Yesterday was Weston's 5th birthday. This marks the 2nd year he has had his birthday in the hospital. 2/5 of his birthdays-so, with my good math skills, I believe that makes 40 percent of his birthdays being spent in the hospital. Maybe I let it get me down too much but that is just down right depressing.
This week has been rough. Who the heck am I kidding? This whole experience is rough! Last week, we saw 2 babies die plus our 4 year old neighbor also passed away plus 2 that had emergency open heart procedures right out in the open (ok not in the hallway but in their glass pod where we could see). Yeah, that puts everything into perspective. The CICU is difficult. Difficult to stay in (there is no sense of day or night) but difficult to walk through as well. You walk down a long hall past 3 pods (4 beds each) of babies. You can't help but look at them and you can see anything that goes on with them. Then, you get to the private rooms. Weston is in the first private room. The doctor wanted him as close to the main desk as possible since he is such a wild spirit. Even though there are HIPPA laws and all of that, everyone knows what is going on with most of the kids here. We know if a family is having a particularly rough time because we see them crying in the hallway. Weston and Easton are the Mayors of the CICU. They know everyone and talk to everyone.
Today is my day at home with the kids. We went to Target (another outing accomplished with just me plus 5-no one lost-success). Shopping here is a lot different than back home. There are only about a million more people here and, let's face it, more than half look like they have been featured on Unsolved Mysteries before.
Avery is getting tubes on Wednesday-YAY! For those who don't know, she passed her newborn screening but has had an ear infection monthly since birth. When we went for her 9 month checkup (on her 10 month bday), the doctor said she had an inverted eardrum. We got an apt here and saw a specialist last week. I knew she needed tubes. This isn't my first rodeo. Anyways, they did a hearing test on her and she promptly failed leading the hearing test lady (fancy name huh?) to declare Avery couldn't hear anything we were saying. I had told her that from the moment we walked in. Adam and I both knew she couldn't hear. She barely babbles and somedays can stand alone while other days, she gets "swimmy headed" and can barely sit up. I am excited to hear her start talking and walking-not that we have any shortage of kids talking to us or running away from us.
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